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Tag Archives: ACC

  1. Touchchat Review: Helping Ellah to speak

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    November 7, 2015 by Benji


    Over the next few weeks she used it selectively when she wanted to, and now knows that when she needs something and we aren’t getting it, she can use the app!

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  2. Blog post #3 for the Friendship Circle Blog – “You are either delusional or so positive that I want to punch you in the face.”

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    April 20, 2015 by Benji


    My next installment in blogging for the Friendship Circle, starts off like this.

    My wife-the kind, caring, loving, beautiful, spiritual, peaceful and all-around wonderful woman-has said this to me on more than one occasion: You are either delusional or so positive that I want to punch you in the face.

  3. Another Blog Post for the Friendship Circle – A vision Statement for my child with special needs

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    March 11, 2015 by Benji


    The Friendship Circle asked me to blog for them again – I was happy to.

    The article is titled Why I created a vision statement for my child with special needs. But I think it should have been called “how I came to make a vision statement for my child with special needs” but either way.

    Here is a link to my first article for them – its a list of 15 things you need to know about Agenesis of the Corpus Callosum.

    And my article introducing what ACC is and that my daughter has it.

  4. List of 15 things you should know about ACC

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    January 12, 2015 by Benji


    After my initial post about my daughter Ellah and her condition called Agenesis of the Corpus Callosum, The Friendship Circle of Michigan asked me to guest Blog for them on occasion. Here is my first post with them. Its a list of resources that people (and the family members) of ACC should have.

  5. An Introduction to Ellah, and agenesis of the corpus callosum

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    November 15, 2014 by Benji


    He asked her who inspires her and Miryam replied, “Ellah, because no matter how difficult a day she is having, whether it’s another stay in the hospital over a cold, or a rough therapy session, or stomach issues, at the end of the day she smiles, laughs and is happy to be around the people who love her”.